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Camp TAG: An inside look into the camp designed specifically for children with food allergies and their siblings.

Monday, August 25th, 2014 | Permalink

By Gina Mennett Lee, M.Ed.  FoodAllergyConsulting.com

me and eleanor camp tag

Eleanor and I pose for a picture with our own campers.

Last month our family took a little road trip to Williamstown, New Jersey so my daughter could attend Camp TAG.  Because most camps and extra-curricular providers are still not equipped to safely handle children with multiple food allergies there are few choices available once summer rolls around.  We were excited to be able to give my daughter the opportunity to have a real camp experience.

What is CAMP TAG?

 “Camp TAG provides a safe place for children with food allergies and eosinophilic disorders and their siblings to have fun – with no worries about allergic reactions – and meet other children who share similar experiences.”   (FAACT website)

Camp TAG is the brain child of Eleanor Garrow, President & CEO of Food Allergy & Anaphylaxis Connection Team (FAACT). She started it in 2010 when she was Vice President of Education and Outreach at FAAN (now FARE).

How does Camp TAG manage food allergies?

Before even looking at the activities the camp provides, parents of children with food allergies need to know how their child’s allergies will be managed.

I was happy to find that Camp TAG has implemented excellent strategies to prevent (and to be able to swiftly respond to) reactions.  Listed below are some of the simple, yet effective strategies that Camp TAG employs.

  • Handwashing: All Campers wash their hands at the beginning of the camp day and before and after snack and lunch.
  • Snacks:  Snacks are provided by trusted food companies that make products free of the Top 8 allergens. The ingredient lists for these snacks are given to parents ahead of time for review.   Water is provided by the camp.  No other drinks are allowed.
  • Lunch:  All campers bring their own lunches each day.  Lunches need to be free of  peanuts, tree nuts, fish, shellfish.Foods with wheat, egg, milk, and soy are allowed, such as sandwich bread, crackers, and cookies (must be free of peanuts, tree nuts, fish, and shellfish). Milk/cheese-based foods are not allowed, such as cheese of any kind, Cheetos, Cheez-It Crackers, Doritos, yogurt, etc., to minimize the risk of cross-contact. Egg-based condiments are not allowed, such as mayonnaise, dressings, dips, etc., to minimize the risk of cross-contact.
  • Rules:  No food sharing.  No touching each other during snack or lunch.
  • Epinephrine:  Epinephrine is stored in an insulated cooler that is kept with the campers at all times. Campers are with trained staff at all times.  Most camp counselors are one of the following:  a person with a food allergy, a sibling to a child with a food allergy or a parent of a child with a food allergy.
  • Access to Medical Services:  There is a trained nurse on staff at the camp site.

 

What activities does the Camp offer?

Not only are the campgrounds beautiful and nostalgic, but they offer everything from zip-lining and swimming to Gaga and mini golf.

jousting camp tag

More than JUST a Camp.

As an educator, I love to see additional opportunities for learning.  At Camp TAG, each afternoon, the campers participate in empowering and engaging lessons about food allergies including issues such as handling bullying.

Camp TAG also offers an optional, free parent education session.  This summer the session was about addressing food allergies through the use of 504 plans, IEPS, and Health Care Plans, a subject near and dear to my heart.  The Parent Education Session was presented by food allergy all-star, Amelia Smith Murphree, FAACT General Counsel and Vice President of Civil Rights Advocacy.  I found the session to be thorough and detailed and very helpful to those that attended.

That’s not the WHOLE story

There is more to this experience than fun and learning in a safe, friendly environment.  As I quickly found, Camp TAG has become an extended family to the campers that attend.  The families here keep coming back year after year and their connection is evident from the first day.

Linda and Bailey Camp TAg

Lynda Bridges and daughter Bailey

Lynda Bridges has been with Camp TAG since its first year. She explains, “I come back every year because I believe in what Camp TAG offers our children. I support what Eleanor has created with Camp TAG.   I don’t have to worry about her (my daughter’s) food allergies during camp because she is surrounded by people who “get it.” “

Her daughter, Bailey, has attended all four years and next year will be a teen counselor. “Camp TAG is the best week of the summer.  (The Camp)  has impacted my life in a big way.  A major part of my life is living with life-threatening food allergies, Camp TAG lets me be around others who get it and understand how to keep me safe.  I  love it and it teaches me so much about food allergies.”

How do these campers feel about Eleanor?  Well, I think this picture tells the story.

eleanor hug camp tag

It is apparent to anyone that attends that Eleanor has created something very special.  To quote my husband, “This is the first time our daughter has been just a camper not the kid with food allergies.”

Every camper learns and performs the Camp TAG song (written by food allergy rock star, Kyle Dine).  This verse is my favorite:

“Camp TAG, it’s me,

Camp TAG,  it’s you,

Where no one worries about food.”

Indeed, this may be one of the few places where our children:

– don’t have to worry about food,

-don’t have to explain their allergies,

-don’t need to make apologies or excuses.

It’s a place where they can just be kids.  There is no better gift than that!

For more information on Camp TAG, visit FAACT’s website.  For specific questions, contact Eleanor directly at Eleanor.garrow@foodallergyawareness.org

 

 

 

Managing Food Allergies in the Classroom: A FREE Guide for Classroom Teachers

Wednesday, April 9th, 2014 | Permalink


By Gina Mennett Lee, M.Ed.

The number of children with food allergies in the United States is now estimated to be 1 in 13.  This means there are approximately 2 children in every classroom with food allergies.   That number is especially alarming given that children with food allergies can be at risk for having a life-threatening reaction called anaphylaxis.  As a classroom teacher, you spend the greatest amount of time with your students, aside from their families.   You are also most likely to be the person who will first need to respond should a reaction occur.   As a matter of fact, in a study of MA epinephrine use in schools, 45% of symptoms developed in the classroom.  See graph below:

Screen shot 2014-04-26 at 1.08.02 PM

 

 

Hopefully your school has implemented a plan for the management of children with food allergies that is consistent with the newly released CDC guidelines.  Whether this has occurred or not, there are still many things you can do as a classroom teacher to ensure that children with food allergies can fully and safely participate in your classroom.   (Please note that older students should be active participants in the management of their food allergies.)

Below are some simple, common sense measures you can implement to ensure that children with food allergies are safe and included in your classroom.

1.    Create a positive climate by fostering an understanding about food allergies.   All eyes are on you and people will follow your lead.  This includes children, parents, and other school employees.

  • Students: It is important to note approximately 50% of children with food allergies report being bullied (31.5% of children with food allergies are bullied specifically due to their allergies).  Consider doing a lesson about food allergies with your students.  There are books and videos available for this use.
  • Other Parents: Speak in a positive manner when discussing food allergy management in your classroom.  I overheard a teacher making a negative comment about a new classroom food allergy policy at a parent night.  As a result, other parents began to discuss food allergies in a negative manner.  This fostered an atmosphere of resentment rather than support. Be aware of how powerful your words and actions are to those around you.

2.   Reduce the risk of accidental exposure

  • Recycled food containers: Are there any food containers being used in your classroom?  If so, get rid of them.  Trace amounts of allergens can be found in these containers.  Even if there were a way to be absolutely sure there were no allergens in the container, it is unsettling for a child to have to use a container of a food he/she has been told not to touch.
  • Soaps and Lotions: Do you have soaps or lotions for use in your classroom?  Check the labels for allergens.  Parents of children with food allergies are a good resource and are often happy to help with this.
  • Art & Craft Supplies: Check the labels for each item to ensure they do not contain allergens.  This may require a phone call to the manufacturer as craft labels are often more difficult to read.   FALCPA (food allergy labeling law) does not apply to these products.  Enlist the help of the parent to the food allergic child.  They may have already checked these products or may be willing to help.
  • Other Classroom Supplies: Go through additional classroom supplies including items such as science experiments and games to ensure they are free of allergens.
  • Food storage:  Where are lunches and/or snacks kept?  Can they be kept in an area that is separate from the learning environment?  Children with food allergies may need a special spot to keep their food that is away from the other foods in order to avoid cross-contact (separate cubby or locker).
  • Hand washing:  It is recommended that children wash hands before and after eating.  Both soap and water, and commercial wipes are effective at removing allergens.  (Please note that hand sanitizers do not remove allergens.)
  • Birthdays, Rewards & Classroom Celebrations: It is recommended that you avoid using food as a rewards or for celebrations.  This will significantly reduce the risk of accidental exposure.  There are additional benefits to this as well.  Children will not associate all fun with food.
  • Food in the classroom:  The safest and easiest option is keep classrooms free of food.  This will automatically reduce the risk of accidental exposure and it has no impact on other children.  It also allows you, as the classroom teacher, the ability to focus on learning rather than food allergy management.   Realizing that this may not always be a possibility, I have created a chart of accommodations needed if food is present in the classroom.

ACCOMMODATIONS NEEDED

Screen shot 2014-04-09 at 12.10.12 PM

 If you or your students eat breakfast, snacks, or lunch in the classroom, there will need to be a system in place to monitor the food being eaten to ensure that they do not contain allergens.  The CDC guidelines recommend that no allergens be present in the classroom.   (If the foods the children are eating are being sent in from home and NOT shared, you may be able to provide a list of “safe snacks” for the other parents in the classroom.  It is important to note, however, that labels and manufacturing practices can change at any time.)   The CDC guidelines also recommend that children wash their hands before and after eating and that all eating surfaces be cleaned.

Do not serve food to any child without the parent’s knowledge and consent.  Gone are the days when you could surprise the class with some homemade cookies.  There are too many risks associated with this, and many other food-related health issues affect children beyond food allergies.  Make it a rule not to serve food without parent knowledge and consent.  Even if you “know” the food is safe, please get permission before serving.  For example, a child with a milk allergy can safely eat watermelon.   However, if the sponge the person used to clean the cutting board for the watermelon was also used to wash a cup that contained milk, there now could be milk proteins present in the watermelon due to cross-contact.

 3.    Communicate

  • School Nurse:  If you are fortunate enough to have school nurse available, speak with him/her about food allergies in general and about the specific needs of the children in your class as soon as possible.  The sooner you are able to do this, the more time you will have to prepare your classroom.
  • Past teachers: Talk to the teacher the child had the previous year to discuss strategies that worked well.
  • Parents/Guardians of Child with Food Allergies: Meet the parents/guardians before school starts to discuss their child’s needs.   Make communication a priority when dealing with the parents/guardians of a child with a food allergy. They will be extremely appreciative.  As an added benefit, they can help you.  Caring for a child with food allergies is a big responsibility and one that they fully understand.
  • Other parents/guardians of children in your classroom: It is considered best practice to not have the child’s allergens in the classroom.  Typically, the school nurse, principal or classroom teacher will send a letter home to classroom parents asking that food containing specific allergens not be eaten in the classroom.  If snacks are consumed in the classroom, it can be helpful to create a list of safe snacks to send home to parents as well.  However, please keep in mind that labels and manufacturing practices can change at any time. Some schools have opted to have only fruits and vegetables for snack time.   The parents of children with food allergies may be willing to offer suggestions for a safe snack list.
  • Be sure to respect the child’s privacy.  It is the law. It’s important not to use the child’s name or give details of the child’s medical history without permission from the parent.
  • Substitute teachers : How will you communicate the needs of the child with food allergies to substitutes?  Will it be in your sub folder?  How will you ensure that the sub reads it?  Will there be a specific sub assigned to your classroom that has been trained and is aware of the needs of the children in your class?
  • Special guests: Whenever someone comes into your room, there is a risk that they may bring something unexpected.  For example, a parent volunteer may walk in with a coffee that contains milk, or a guest speaker may bring in a craft supply that contains an allergen.  Do as much planning as you can in advance.  Discuss guests with the parents of the food allergic child, when possible.  They may be able to anticipate potential risks.   (If the child is old enough, you may discuss it with the child directly.)  Be prepared to respond if someone does bring an allergen into the classroom.  Some teachers post signs outside the classroom as a reminder that the classroom is allergen-free.
  • Field trips:  Again, communicate with the child’s parents/guardians in advance of the trip.  Some things you can prepare for and others you cannot.  The child with food allergies should always be with a chaperone who is trained and has immediate access to the child’s medication.  It’s also good idea to travel with wipes and keep them with you at all times.  It can be helpful for unexpected clean-ups and hand washing.  Always offer to allow the child’s parent to attend field trips.

4.    Be prepared to respond should a reaction occur

  • Training: Have you been trained to recognize the symptoms of an allergic reaction?  Do you know how to respond?   Do you understand the child’s Food Allergy Action Plan/Emergency Care Plan?  Do you know who is repsonsible for administering the epinephrine?  If you are responsible, have you been trained and are you comfortable using the epinephrine auto-injector? Do you know who is responsible for calling  911 and what to say?  (If not, discuss creating a 911 script with your school nurse and/or principal and post it near the phone and keep it with emergency communication devices when away from the classroom.)
  • Emergency Communication: Do you have a way to directly contact emergency services at all times during the school day?  (This includes recess and other times you are not in your classroom.)
  • Medication:  Where will medication be kept?  Is the child old enough to self-carry?  If not, will the medication be kept in your classroom?  (One suggestion is to hang a zippered pouch from a hook that is too high for children to reach but easily accessible to adults.)
  • Don’t be afraid to use the epinephrine auto-injector.  It will save the child. It will not hurt them.  If state law/regulations and local policy allow you to administer epinephrine, ask your school nurse if there is an opportunity to try administering an expired epinephrine injector it into a grapefruit.  This will allow you to experience how a real auto-injector feels.  Depending on the type of auto-injector the child is prescribed, it can feel quite different from the trainer.

5.  Be confident.  Once you have implemented these strategies, you should feel confident that you can provide a safe and welcoming environment that will allow all of your students to grow as learners and as people.

 

I have created a FREE checklist for managing food allergies in the classroom.  Screen shot 2014-04-09 at 1.05.44 PMScreen shot 2014-04-09 at 1.05.52 PM

 

* * Data taken from The Management of Life Threatening Allergies in School: Lessons Learned from Massashusetts  By Michael Pistiner MD, MMSc and Anne H. Sheetz RN, MPH, NEA-BC.  

Thank you to Julia Verillo, B.A. Elementary Education (3rd grade teacher in CT), and Tina Stewart, M.Ed. (3rd grade teacher in MA) for reviewing this article.

Resources:

Food Allergen Exposure in the School Setting

The Management of Life Threatening Allergies in School: Lessons Learned from Massachusetts, Epinephrine Administration in Schools Brief Summary

Voluntary Guidelines for Managing Food Allergies in Schools and Early Care and Education Programs 

 

The School Access to Emergency Epinephrine Act. Now that it is Law, What Does it Mean?

Friday, November 15th, 2013 | Permalink

By Gina Mennett Lee, M.Ed.

Food Allergy Educator, Advocate & Consultant

 

What It Is.

This federal law provides incentive for states to pass laws that meet all of the requirements outlined below:

  1. States must grant rights for public school students to self-administer any asthma or anaphylaxis medication authorized by the student’s doctor (with conditions—see the law for details)
  2. State must require elementary and secondary public schools to permit authorized personnel to administer epinephrine to someone believed to be having an anaphylactic reaction.  They must also have stock epinephrine in a secure but accessible location.  The stock epinephrine must be prescribed via standing orders from a licensed physician,
  3. State must have Good Samaritan Law to protect those that “in good faith” administer the epinephrine to treat anaphylaxis

The incentive is that states meeting these requirements get preference when applying for asthma-related grants.

 

What it is NOT.

 

Probably more important that understanding what the law provides, is understanding what it does not provide.

  • It is not a mandate for all public schools to maintain a stock epinephrine.
  • It does not provide funding for schools to acquire stock epinephrine.
  • It does not provide funding directly to states for passing stock epinephrine laws.

 

Why is it important?

This law is important because it signifies an important step in the right direction.  In this current economic climate, many states have halted the passing of any legislation considered to be an “unfunded  mandate”.  By signing this into law, President Obama is acknowledging, on a national scale, the importance of stock epinephrine.  Hopefully, this will help those advocates on the state level add another bullet point to the “pros” of passing state law that mandates stock epinephrine in all public schools.   It is, however, only the beginning of the process.  Getting legislation passed in all 50 states is going to require a great deal of work from anaphylaxis educators and advocates in each of the states that currently do not have a stock epinephrine law.

Mennett Lee, LLC – Food Allergy Consultant and Educator

Monday, November 4th, 2013 | Permalink

Gina Mennett Lee, M.Ed.–Helping families, schools and businesses create safe and inclusive environments for those with food allergies

Gina Mennett Lee, M. Ed.  is a Connecticut-based food allergy educator, advocate, and consultant.   She holds a Master’s degree in Educational Leadership and a B.S. degree in both Elementary and Special Education.  She is an experienced special education, elementary and middle school teacher.  She is the founder and President of Food Allergy Education Network, a Connecticut-based non-profit and Co-Founder of the National Allergy & Anaphylaxis Council, a national advocacy group.

As a mother who witnessed her daughter’s near-fatal allergic reaction, she brings real world experience to the field of food allergies.  She is widely known for her common sense, fact-based approach to managing food allergies.  Because of her experience and knowledge, she is in the unique position to view food allergies & anaphylaxis from the perspective of a business owner, a parent, a teacher, and a school administrator.   She is dedicated to helping families, schools,  businesses, and organizations create safe and inclusive environments for those with food allergies.

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